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FAQs

 Registration

 

1.  How do I register with the study?

a.  It’s very easy to register with the EUROPAC study, you can contact us directly using any of our contact details and then we can send you out one of our registration packs as long as you meet the eligibility criteria.  You can also ask your GP to refer you if you would like.

b.  If you are a health professional who wants to refer a patient to us, you can write a referral to EUROPAC addressed to our clinician Mr Tom Hanna. Secondly, you can simply pass on our contact details to the patient directly.

 

2.  Can I register other members of my family with the study?

If you are registered with the EUROPAC study and wish for other members to join we encourage you to discuss the study with your relatives. They must contact us themselves if they would like to register with us.

 

3.  Do I have to pay to register?

You do not have to pay to register. EUROPAC is funded by a grant from the National Institute of Health Research (NIHR) via the Pancreas Biomedical Research Unit in Liverpool.

 

4.  How long does it take for me to register?

We will send you out registration documents straight away which once returned, the team will register your family and add your details to a secure database. We will then contact you with more information regarding the voluntary blood sample for research purposes.

 

5.  Can I donate to EUROPAC?

EUROPAC greatly appreciate donations. They help with the running costs of the study and to showcase the research produced by the EUROPAC team. More information can be found on our How can you help page.

 

 Screening

 

6.  Can I join the registry but not be screened?

Screening is offered to at risk individuals, we welcome the registration of eligible individuals that would like to join the registry but do not wish to be screened. They will be kept informed of any future research that may be of interest to them.

 

7.  Why does EUROPAC not screen the whole population?

EUROPAC is a research study; there is currently no proven screening programme for pancreatic cancer. We have developed a screening programme that is aimed at individuals deemed at increased risk which is why it is referred to as a secondary screening programme.

 

        8.  I am now registered with the study, how long will it take for me to be screened?

If you are invited to participate in the secondary screening study the length of the process varies for each family. We will need to confirm at least two cases of pancreatic cancer in your family before we can invite you to a screening consultation.

 

        9.  I don’t have original death certificates, will this be a problem?

In order to be considered for our screening programme our team need to confirm pancreatic cancer in at least to family relatives. If you do not have access to death certificates this is not a problem, with your consent, we are able to approach the appropriate cancer registry to confirm the cancer diagnosis. We also have contact with many cancer registries outside of the UK.

 

        10.  Will you be able to help with my travel costs?

If you are a participant that is being screened you will be required to attend visits to Liverpool or a local centre to you. Unfortunately EUROPAC does not have funds to help with travel costs. If you are currently receiving help and support through benefits you may be able to receive some help. More information can be found on: http://www.nhs.uk/nhsengland/Healthcosts/pages/Travelcosts.aspx

 

        11.  Can I be seen at my local hospital?

EUROPAC is based in at the Royal Hospital in Liverpool however we have other collaborators in the UK. Take at a look at our EUROPAC Centres page for your nearest centre. We also have collaborators in Germany and France.

 

        12.  Is there any other way I can reduce my risk of pancreatic cancer?

Smoking is the most important risk factor for pancreatic cancer. Scientists think this might be because harmful cancer-causing chemicals present in the cigarette smoke enter the blood and damage the pancreas. Being overweight is also thought to increase an individual’s risk. Having a risk factor, or even several risk factors, does not mean you will get the disease.

More information can be found at:

http://www.pancreaticcancer.org.uk/information-and-support/facts-about-pancreatic-cancer